Hypoplastic Left Heart Syndrome (HLHS)
Information Page

Pictures of HLHS Survivors
California Heart Connection's Annual Picnics

Surgical Options
What to Ask
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This web site is not intended as medical advice.  Please consult your physician with any questions you may have regarding your child's condition.

Copyright © 2001-2011 D.L. Hilton-Kamm, all rights reserved.
Realizing the need for families with children with heart defects to have support, we founded California Heart Connection, a nonprofit support network.  These are pictures from some of our recent events.  To learn more, please see our California Heart Connection website.
Jeni, HLHS Survivor
(born 1985)

CA Heart Connection's
HLHS Picture of Hope - 2005
to see more pictures, see www.caheartconnection.org
To see more Pictures of Hope, see the Little Hearts, Inc. website.  You can view their 2005 picnic photo WITH 47 CHILDREN WITH HLHS!!  (Towards th bottom of the page.)

Also see the TCHIN portrait gallery which shows LOTS of children of all different ages with HLHS.
Jessica, HLHS Survivor
(born 1987)
Many people are surprised to learn that there are HLHS survivors in their late teens.  The 3-stage surgeries were developed in the early 1980's and were experimental at first.  However, there are survivors from those very early days of the Norwood procedure.  The surgeries have been modified and improved over the last 20 years and so there are MANY more young survivors of HLHS today.  These young adults and their parents are truly an inspiration to all of us with children with HLHS.
Sema, HLHS Survivor
(born 1988)
Sean, HLHS Survivor
(born 1985)